The Nitty Gritty

I am very much at peace with Aubrees diagnosis, and I think she is too, she doesn’t know life any other way.
So when people ask “Will she ever…(eat properly/walk/talk/etc)?” my answer is always “Who knows?” when given the diagnosis we wasn’t handed a crystal ball.
Who said that not being able to eat solids is the be all and end all? We ensure she receives optimum nutrition via puree.
Is not being able to talk really a big deal? She communicates in other ways.
Not walking? That’s absolutely fine. If she does walk that’s great! If she doesn’t? We’ll get her the coolest wheelchair going.
Since when is quality of life defined entirely by what you can and cannot do?
As long as we support Aubree and continue with constant physio, I know we are giving her every opportunity to achieve her optimum.
What do I really want? I want her to be comfortable. I want her to be happy.
We will all be bursting with pride no matter what. 💛

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The Nitty Gritty

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